Sunday, November 15, 2009

H1N1 Shot

I was on the fence about getting the vaccine until I talked to my oncologist. Although he did say that he didn't consider my immune system to be currently compromised, he said that H1N1 is really nasty (he's had it himself) and encouraged me to get it (the shot, not the flu).

If you are a cancer patient and decide to get the vaccine, don't bother waiting in line at one of the immunization clinics. Based on my experience on Friday, they seem to be giving them routinely to anyone with an appointment at the cancer clinic. I was in and out of there in about 5 minutes.

The nurse who did the injection told me that I might have flu-like symptoms. She was right. Along with a surprisingly sore arm (I'm used to getting a large needle in my butt every 4 weeks, so I thought I was tough), I am feeling like crap: headache, nausea, sort of achy all over. I might not have been so quick to roll up my sleeve if I had known...

If you are currently on chemo, you may want to read what Laurie was advised at Chemotherapy and the H1N1 vaccine.

Sunday, November 8, 2009

Not Done Yet - Alice's review

Some time ago a group of us attended a book launch of Laurie Kingston’s “Not Done Yet”. Alice kindly offered to write a review of the book. (Thanks Alice!).








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Not Done Yet: Living through breast cancer by Laurie Kingston 2009
Review by Alice McClymont

Laurie Kingston was 38 with an active life, a family and a demanding job when she was diagnosed with breast cancer in December 2005. In November 2006 she learned that the cancer had spread to her liver. Her book “Not Done Yet” published in 2009 by Women’s Press Toronto is a very personal journal of her diagnosis and treatment, written with the utmost honesty, wit, insight and feeling. What makes the book unusual is that it is in the form of a blog with various lengths of entries and that it is a positive, witty and inspiring book in spite of the severity of the topic. Reading this book is like reading someone’s personal journal which involves the reader in the day to day life of Laurie, her very supportive spouse Tim and her two sons. Especially touching are the entries about her sons Sacha and Daniel and, as children often do, they provide some light moments in the midst of difficult times. For example when the boys are playing “pirate treasure” they find Laurie’s prosthesis in a box and ask what that pinkish. squishy thing is. When Laurie replies that it is something to make her look the same on both sides her sons retort with “ Cool”, taking it all in stride.

The book is very informative about various procedures such as bone scans, chemotherapy, ultrasounds and radiation and gives an honest account of both positive and negative communication with various health professionals. It is chilling to read about the kinds of comments that can be made by those who should know better like the medical student who referred to her portacath as a “lump” and the radiation oncologist who, when told the area radiated was still too tender for a prosthesis said ”Well, you have to wear something in public”, this the same doctor who objected to her having a different surname than that of her spouse.

The book will be of interest to different people for different reasons. To other cancer patients or survivors, the book shows how someone with a difficult prognosis can have a superlative outcome and the ups and downs of getting there. To the medical professionals, there are many hints about the importance of treating the patient with care and respect and being very careful of what one says. It is always better to look at the glass as half full no matter the prognosis. To relatives and friends of a cancer patient, the book clearly shows the importance of small gestures and kindness. As one of Laurie’s cards says “Between me and insanity stand my friends”.

As a breast cancer survivor with metastasis I particularly related to this book. I am much older than Laurie but relate so well to her love of reading and how getting into a good book can take your mind off the cancer, and like Laurie I believe a glass of wine can cure many ills. I also relate to Laurie’s wanting to write about her experience, both as therapy and to provide information to others who need positive stories. No one would choose to have cancer but as Laurie says “ my life with cancer is infinitely better than I would have thought possible”.

Laurie's blog: Not Just About Cancer
Read about Alice's journey

Thar's snow in them thar hills

It's a beautiful fall day; 13 c and sunny. It's hard to believe that there's snow in the Gatineau hills. We hiked to the ruins of the old Thomas Wilson fertilzer plant on Friday. It was a lovely way to spend the morning, before heading to the cancer clinic for my injection of Faslodex and bloodwork. People always ask how the treatments are going, but the truth is that they are pretty uneventful. The injection is quick and when I don't need blood work, they flush saline through my port to keep it open.

Sweater obsession

Anka keeps telling me I should 'break out of my box' and make something besides sweaters. She's probably right but I love working with the different colors and seeing these toddler size creations evolve. Before I finish one I'm already planning the next.
I did venture from 'my specialty' to make this hat & scarf set.

As mentioned before, these items will be on sale at the Canturbury Community Centre Craft sale on November 29th. All proceeds go to the Stephen Lewis foundation to help grandmothers raising their grandchildren in Africa.

Thursday, November 5, 2009

Losing faith in cancer screening, by Julie Mason

The Ottawa Citizen
November 2, 2009

"Despite the long lineups at flu shot clinics, there are still an astonishing number of Canadians who say they aren't planning to get the H1N1 vaccine, including the usual suspects: the vaccine conspiracy theorists who think it's all a money grab by Big Pharma; the health purists who won't put anything in their bodies but reverse osmosis water and mung beans; and the thrill seekers who smoke, drive without seatbelts and bungee jump from high places."


Read the full article

Tuesday, November 3, 2009

Canterbury Craft Sale - Nov 29

Help! I've taken up crocheting and I can't stop! Is there a support group for this?














I've been making these sweaters for a group I belong to called Ammas for Grandmas (part of the Stephen Lewis foundation
Grandmothers to Grandmothers campaign.

The sweaters will be for sale at the Canterbury Christmas Craft Sale on Sunday Nov 29th, along with a variety of other handmade crafts and baked goods.

Date & time: Nov 29th,
10 a.m. to 2 p.m.

Sunday, November 1, 2009

Hallowe'en

It was a very spo-o-o-oky night in the neighbourhood last night. The folks next door went all out with the decorations and we had fun, even thought there weren’t as many trick-or-treaters as we would have expected. Katey was an angel (but then she usually is). The dog next dog (also named Katie) was a devil, so they were quite the pair.
See more Hallowe'en pictures on Katey's blog.